Online talk: Ehlers-Danlos Syndrome awareness month 2026
Time: 1400-1500
Date: Thursday 14 May 2026
Location: Online via MS Teams
Further information: Promoting Ehlers Danlos Awareness month or email ParliAble@parliament.uk
Did you know? Although at least 1 in 500 people in the UK are diagnosed with Ehlers‑Danlos Syndrome (EDS) or Hypermobility Spectrum Disorders (HSD), many more remain undiagnosed due to low awareness among the public and healthcare professionals.
To mark International EDS Awareness Month, Gabrielle Fleming partners with ParliAble to share her experience of living with Hypermobile Ehlers-Danlos Syndrome – a hidden disability.
“For years, I lived with symptoms I couldn’t explain while trying to build my career. By sharing my experience, I hope others feel seen and supported, and know that with the right adjustments, chronic conditions don’t have to define or limit us.”
The session will cover:
- Introduction to EDS
- Gabrielle’s personal story
- Workplace adjustments and how you can support colleagues with EDS/HSD
- Resources for further information and support
- Q&A
Everyone is welcome – whether you’re affected personally, supporting a colleague, friend or family member, or simply curious to learn more.
About EDS
Ehlers‑Danlos Syndromes are a group of genetic connective tissue disorders often associated with hypermobility (‘double‑jointedness’). Symptoms typically appear in childhood, but issues like chronic pain, fatigue, and mobility challenges may develop later in life. Experiences vary widely from mild to significantly disabling.